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TRANSVERSAL PLATFORMS
Promoting resources shared by CIBERER and Orphanet, working so
that the relationship between the Institutions is an added value for
their respective projects
In 2013:
• The list of rare diseases that CIBERER works with was reviewed and updated.
• Collaboration was offered to the Patient Care Service in managing of queries and
information requests by patients.
• All the CIBERER Research Programmes (RPs) have collaborated with Orphanet
by updating the activities they carry out in the CIBERER database, which in turn
serves to update the Orphanet platform.
• Additionally, CIBERER investigators belonging to different units (U703, U704,
U712, U735, U752, U753 and U755) have collaborated with Orphanet in a number
of ways, such as by reviewing/writing summaries and clinical guidelines.
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