Page 64 - MemoriaER-Eng

SCIENTIFIC ACTIVITY

Appearances Some of the 1,002 appearances in 2013 are highlighted below in chronological order:

in the press
• Feature in Diario Médico about the future of the NBRC. January 21, 2013.

•
Feature about Wolfram syndrome including an interview with Virginia Nunes in
EFE Salud. January 28, 2013.

• Article in El Mundo about the clinical trial with gene therapy for Fanconi anemia.

January 29, 2013.

•
Feature in El País about crowdfunding explaining how funding is raised for the

Mercedes Serrano group for the I Lowe You project. February 24, 2013.

• Interview on TVE Canarias with Eduardo Salido. February 28, 2013.

•
Feature in Diario Médico about rare diseases including interviews with María Luisa

Martínez-Frías and Jordi Cruz in the Conference “Investigar es Avanzar” of CIBE-
RER. March 1, 2013.

• Antena 3 news about the discovery of DNA including interview with Francesc

Palau. April 8, 2013.

• News in La Vanguardia about research conducted by Jordi Surrallés which identi-

fies the gene regulating three diseases. April 25, 2013.
é
•
News in El Periódico de Catalunya about research conducted by Eugenia Res-

mini which approaches the relationship between the stress hormone and cured
Cushing’s syndrome.

• Interview in the programme “Para Todos La 2” aired by TVE with Mercedes Serra-

no and Manuel Armayones. May 24, 2013.

• News in Las Provincias about a $250,000 award to a programme for detecting

sepsis led by Federico Pallardó and José Luis García. August 5, 2013.

•
News in El Mdico Interactivo about the European E-IMD and E-HOD projects led
by CIBERER. September 4, 2013.

The specific event in which CIBERER addresses patients and society as a whole to-
CIBERER
gether is undoubtedly the Rare Disease Day, entitled “Investigar es Avanzar”. About
dissemination 200 representatives from patient associations, companies and research groups at-

activities aimed tended the 2013 installment. Many other activities were organized to disclose the

at patients and research conducted in CIBERER: events organized in collaboration with CIBERER
units (see previous chapters), through social newsletters, etc.
society

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