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Most relevant scientific articles
• crespo i, Granell-moreno e, santos a, Valassi e, De Juan-DelaGo m, ViVes-Gilabert y, Webb sm, Gomez- anson b, resmini e. Impaired decision-making process and thinner prefrontal cortex in patients with Cushing’s syndrome . Clin Endocrinol . 2014; 81(6): 826 - 833 .
• mo D, blum WF, rosilio m, Webb sm, qi r, strasburGer cJ . Ten-year change in quality of life in adults on growth hormone replacement for growth hormone deficiency: an analysis of the hypopituitary control and complications study . J Clin Endocrinol Metab 2014; 99 (12): 4581 – 4588 .
• santos a, resmini e, crespo i, pires p, ViVes Gilabert y, Granell e, Valassi e, Gómez anson b, martínez momblán ma, mataró m, Webb sm . Small cerebellar cortex volume in patients with active Cushing’s syndrome . Eur J Endocrinol 2014; 171 (4): 461 – 469 .
• crespo i, Webb sm . Perception of health and cognitive dysfunction in acromegaly patients . Endocrine 2014; 46 (3): 365 - 367 .
• aulinas a, ramírez mJ, baraHona mJ, Valassi e, resmini e, mato e, santos a, crespo i, bell o, surrallés J, Webb sm. Telomere length analysis in Cushing’s syndrome . Eur J Endocrinol 2014; 171 (1):21 – 30 .
Highlights
Institution: Instituto de Investigacion del Hospital de la Santa Cruz y San Pablo Contact: Instituto de Investigacion del Hospital de La Santa Cruz y San Pablo . S Antoni Ma Claret, 167 08025 Barcelona · Phone: (+34) 93 553 79 17 o 93 556 56 61 · E .mail: swebb@santpau .cat
The U747 performs clinical research oriented to Rare Pituitary Diseases, with translation to the NHS, registries and collaborations with patient associations . In translation we have continued to collaborate with EPIRARE, Orphanet-Spain and the PI is the coordinator of the CIBERER program “Endocrine Medicine”; in 2014, 5 clinical groups have been linked to this program, strengthening its translational activity . Since 1982, the PI is responsible of specialized clinics for Rare Pituitray Diseases, and is a recognized reference centre due to its professional excellence .
We have obtained a new publically funded research project PI 14/000194, ISCIII: “Study of bone microarchitecture and resistance and their determining factors in Cushing syndrome or acromegaly in remission . Model to investigate the interaction bone- body fat” .
We have continued to collaborate in patients meetings collaborating with the associations of acromegaly and Addison’s disease patients .
In transference to the productive market, we have been involved in many clinical trials (in phase 2, 3 and 4), epidemiological Studies, R&D&I and several advisory boards on Rare Pituitary Diseases, and have thus funded the salary of a research nurse .
The copyright fees of the PI and the ascribed researcher X Badia of the specific quality of life questionnaires for acromegaly, Cushing’s sd (and recently also for primary hyperparathyroidism) , are also fed back into the Group to hire a predoctoral research fellow .
In 2014 the Agencia de Gestió d’Ajuts Universitaris i de Recerca (AGAUR) recognized the Group (355) in the call for Support for Research Groups , and classified this Group as the 4th (the first clinical group) of the 60 groups of the IIB-S Pau, demonstrating its internal and external value .
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