Page 46 - MEMOCiberer014-ENG

COMMUNICATION PROGRAMME
With its Communication plan, CIBERER continuously informs the society about the work of the research groups, their projects, the diseases they are researching and the new knowledge generated . Patients and support associations are the main targets of these communication actions .
For dissemination activities, the CIBERER, consisting of the Communication Department and its collaborator Miquel Calvet maintained continuous contact with the press, has prepared a scientific newsletter and a social newsletter, has managed a Twitter account and kept the CIBERER web updated .
CIBERER has also directly approached patients and their families with the periodic organisation of conferences or with their presence in scientific, institutional and social forums relating to RD .
The CIBERER Communication Plan is split into two large lines of action, the Internal Communication Service
and the External Communication Service .
Internal Communication Service
With this service and through the researchers and professionals associated with the institution, CIBERER consolidated its activity and corporate image and brought together its networking structure .
CIBERER worked hard to turn its web page (www.ciberer.es) into an effective instrument . All the calls for proposals (employment, training, aid programmes, etc .) that may be of interest for the groups, all the events organised by CIBERER or relating to RDs, updated news relating to the Institution and press clips available on the Intranet have been included . This web page was updated every day .
The CIBERER Electronic Newsletter must also be highlighted . It is a very effective publication, on one hand, for disseminating the research on RDs conducted by CIBERER and on the other, for providing all the information of interest about RDs to researchers that are both hired by and attached to our Institution .
Therefore, in 2014 work was done to improve knowledge among the different CIBERER research groups and to tighten their scientific collaboration links .
MOST NOTEWORTHY ACTIVITIES PERFORMED IN 2014:
• The Electronic Newsletter used to periodically report CIBERER activity to associated researchers and also to external directors interested in RD . In 2014, 8 electronic newsletters were sent out .
• Services over the web for communicating funding opportunities and events for research on RDs has been updated daily with all the notices and events of interest for all the research groups
External Communication Service
The Communication Service has offered support to researchers so that their activity can be better understood both by people suffering from RDs and by society as a whole . With its External Communication Service, CIBERER has transmitted the scientific activity of its research groups, social and institutional activity of the Institution and the events it organised, in order to bring it closer to the reality of patients and family members .
CIBERER has used various means for that purpose . The Communication Department has acted as a press office, carrying out dissemination campaigns intended for the press and dealing with information professionals . CIBERER has also organised dissemination events and updated its web page every day to turn it into an effective communication platform on both an external and internal level . It has also periodically sent out the Social Newsletter, an electronic publication for providing all the information about CIBERER and its research on RDs to patients, associations that represent them and to anyone else interested in this field . CIBERER has also had an active Twitter account which it uses to interact with researchers, patients and the remaining groups of interest in RD .
46 CIBERER » Annual report 2014