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OBJECTIVE 2: TO PROMOTE A STRATEGIC ALLIANCE AND DISSEMINATION PLAN
The CIBERER Biobank maintains the following collaborations:
• Member of the Red Valenciana de Biobancos (Valencian Biobank Network) (RVB) since 2010, actively participating in the different work groups .
• Draft Collaboration Agreement with the Centro Superior de Investigación en Salud Pública-FISABIO of the Valencia Regional Government, entered into in 2009 in order to establish an operational framework that promotes collaboration in scientific research, technological development, staff training activities .
• Draft Agreement with the Banco Nacional de ADN in order to cooperate in the creation and development of the CIBERER Biobank and in the implementation of projects and research programmes to be carried out together . Active since 2008 .
• Agreement with Sistemas Genómicos since 2012 for sending RD samples from the clinics of Sistemas Genómicos to the CIBERER Biobank .
• Member of the Blood Derivatives work group of the National Biobank Network since 2010 .
• ‘Associated Partner’ in the 7PM RD-Connect project (HEALTH . 2012 . 2 . 1 . 1-1-C: databases, biobanks and clinical bio-informatics hub for rare diseases) coordinated by H . Lochmüller, of Newcastle University .
• Agreement with the Fundación FEDER whereby the biobank has received funding for hiring technical staff to provide support in the development of human iPS generation technique .
Disseminating information about Biobank activity
In 2014, the biobank has participated and disseminated its knowledge in 5 conferences/meetings, namely: ‘Investigar es Avanzar’ Conference, the 7th Annual CIBERER Meeting, the 3rd Scientific Meeting of TREAT- CMT, Biobank Introduction Course in Hospital La Fe and the 5th National Biobank Congress .
OBJECTIVE 3: TO GENERATE ADDED VALUE FOR CIBERER GROUPS.
CIBERER groups value the importance of having the Biobank platform within the network . In 2014, several expressions of interest were received by CIBERER groups, including:
• Group: U704. Dr. C. Ayuso / Dr. M. Cortón .- Collaboration in immortalizing cell lines .
• Group: U730. Dr. V. Nunes / Dr. M. López de Heredia .- Within the framework of an international project (European and North American groups) to study Wolfram syndrome, samples of DNA, RNA and immortalized cell lines will be collected (from about 30 patients) . CIBERER Biobank will handle processing, storing and safeguarding of these samples .
• Group: U733. Dr. F. Pallardó / Dr. J. L. García-Giménez .- The Biobank collects and manages samples for two projects led by these researchers .
• Group: U745. Dr. J. Surrallés / Dr. M. J. Ramírez .- Collaboration in immortalizing cell lines of patients with Fanconi anaemia .
• Group: U753. Dr. P. Lapunzina .- Collaboration in immortalizing cell lines of patients with different pathologies .
• Group U760 Dr. V. L. Ruiz .- Collaboration in immortalizing cell lines of patients with different pathologies .
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