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Fig . New statistical structure of cases entered
Supported Tasks
Consolidating the platform requires a number of telephone calls and emails, therefore the researchers are provided with a customised helpline . The system is available 24/7 and provides services to staff during wor- king hours (from 8 am to 7 pm) which allows reacting to problems suitably . To prevent data loss in the event of a technical problem, total and partial database backups are scheduled on a daily and weekly basis . The system has a built-in helpdesk option as well as help documents explaining the content of all the system’s variables .
This application was developed taking the following options into account: • Recruitment of patients and controls for transversal and longitudinal projects . • Mandatory and optional forms . • Sharing of patients between different projects (particularly important for controls) . • Collection of clinical, demographic, genetic and imaging data . • Support for different user profiles (project leader, data collection, centre manager, etc .) . • Report management . • Data collection and activity statistics in the last period . • Consolidated data export for statistical analyses through standard applications . • Multiuser, multicentre, ubiquitous access . • Support for standardised questionnaires . • Support for several languages . • Internal quality control on data and data collection quality indicators .
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