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REHEVASC. Registry of Vascular Liver Diseases
The REHEVASC platform, active since 2011, has the purpose of registering a group of rare vascular liv- er diseases (Budd-Chiari syndrome, non-neoplastic non-cirrhotic portal thrombosis, idiopathic portal hy- pertension) whose common characteristics include the high risk of being able to go on to portal hyper- tension in the absence of cirrhosis. Over these years the dissemination of REHEVASC and its associated documents which establish consensus recommen- dations for the diagnosis and treatment of these dis- eases has enabled increasing the interest and rec- ognition of these diseases (often under-diagnosed).
Hence, there are at the present time 17 Spanish care centres which are actively registering patients. In the last export of data in the register (February 2016) over 450 patients were registered. In spite of their in- frequency, 7 of these centres registered over 20 pa- tients. The exploitation of the register has enabled presenting a work this year at the congress of the AEEH on the incidence of rethrombosis in patients with non-neoplastic non-cirrhotic portal thrombosis which is at the present time in the stage of drafting for publication.
Platforms
CIBEREHD I Annual report 2015 I 33