Page 69 - MemoriaCIBER-2018ENG

Hepa-C
Coordinator:
Xavier Forns Bernhardt
In 2018, as a result of the large amount of work done in previous years, Hepa-C multi-centre registry has included a much lower number of new patients. As was understandable,the
Registry of Vascular Liver Diseases. REHEVASC
Coordinator:
Juan Carlos García-Pagán
The REHEVASC platform has been running since 20 September 2011. This is a Registry of patients diagnosed with 4 vascular diseases of the liver in Spain of the type considered to be “Rare Diseases” with a prevalence under 5/10,000 inhabitants.
It covers diseases with non-cirrhotic portal hypertension (NCPH):
• Non-cirrhotic non-tumoral portal thrombosis (PVT)
• Idiopathic portal hypertension (IPH)
• Budd-Chiari syndrome (BCS)
• Congenital hepatic fibrosis (CHF)
Its main aim is to provide a “uniform” diagnosis and treatment for these diseases as well as to improve this diagnosis and treatment of these diseases and be able to perform collaborative studies enabling furthering knowledge about these.
In 2018, the following proportions of new patients were diagnosed and registered:
• PVT: 25 patients, obtaining a final register of 340 patients in 2018.
• IPH: 19 patients, obtaining a final register of 143 patients in 2018.
production resulting from this registry has dropped considerably. We should stress the article included below and two studies which will come out in 2019 and which appraise new guidelines for antivirals.
•
•
•
Ampuero J, Jimeno C, Quiles R, Rosales JM, et al.
Impact of comorbidities on patient outcomes after interferon-free therapy-induced viral eradication in hepatitis CJ Hepatol. 2018 May;68(5):940-948.
SBC: 8 patients, obtaining a final register of 88 patients in 2018.
FHC: No new patients have been diagnosed, with a final register of 11 patients in 2018.
At the present time there are 20 reference hospitals nationwide involved in attempting to diagnose this type of patients:
• Hospital Universitario y Politécnico La Fe • Hospital Virgen de la Salud, Toledo
• Hospital Universitario Puerta de Hierro
• Hospital Universitario Ramón y Cajal
• Clínica Universidad de Navarra
• Hospital Clínic de Barcelona
• Hospital Santa Creu i Sant Pau
• Hospital Universitario Gregorio Marañón
• Hospital Universitario Arnau de Vilanova
• Hospital Universitario Central de Asturias (HUCA)
• Hospital Universitario de Canarias
• Hospital Universitario Marqués de Valdecilla
• Hospital Universitario San Cecilio
• Hospital Universitario Son Espases
• Instituto universitario Dexeus
• Complejo Hospitalario Universitario de Albacete
• Hospital del Mar Hospital del Tajo,Aranjuez • Hospital Germans Trias i Pujol
• Hospital Parc Taulí, Sabadell
• Hospital Broggi ( cooperation with HCB, referrals of patients for registering)
69
CIBEREHD | ANNUAL REPORT 2018