Page 124 - MemoriaCIBER2019-ENG

BiblioPRO
BiblioPRO is a virtual repository of Patient Reported Outcomes (PROs). Its mission is to promote the measurement of PROs through the preparation of detailed reports on each instrument through systematic literature reviews, scientific evaluations, and specialised training.
The BiblioPRO Scientific Committee includes 18 researchers from 14 different institutions (including researchers from CIBERESP, CIBERNED, CIBERSAM and REDISSEC).
Repository
• REGISTERED USERS: 3,208 new users (19,316 accumulated users: 26% increase compared to 2014-2018).
• NEW INSTRUMENTS: 23 new instruments (total of 2027 instruments; 1.1% compared to 2014-2018).
• MONTHLY VISITS: an average of 7,300 visits a month, (11% compared to 2014-2018).
• SUBLICENCES: 489 licenses granted, similar to the previous period.
• SYSTEMATIC REVIEW:
- Publications in 2016 - peer review of 2,400 titles and 942 summaries; Data extraction from 738 articles, and 279 instruments identified.
- Publications in 2017- 4,691 identified articles, 1604 for full text; information extraction of approximate- ly 200.
BiblioPRO International
• Although initially proposed as a new European website of BiblioPRO, it was finally decided that non-Euro- pean countries would also be included, with the new BiblioPRO International website.
• The url www.biblioprointernational.org has been reserved and is waiting to be launched in 2020.
• Progress is being made in distribution agreements with:
- SF Health Surveys (Optum-Insight): Europe and Latin America.
- Test of adhesion to inhalers (Chiesi, SEPAR), 17 languages.
- Hereditary angioedema-QoL questionnaire for adults (FIBHULP-IdiPAZ): 19 languages.
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Platforms