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• X b; M r; e V; h F; a F; s M W. Mapping CushingQOL
adiaosetalassiranzorsytheebbMost relevant
scores to EQ-5D utility values using data from the European Registry on Cushing’s
scientific syndrome (ERCUSYN). Quality of Life Research 2013; 22 (10):2941-50: FI 2.421. 1o

articles
cuartil (18 /82 HEALTH CARE SCIENCES & SERVICES). ISSN: 1573-2649.

• MJ barahona; e resMini; d Viladés; G Pons lladó; r leta; t PuiG; sM Webb. Coronary

artery disease detected by multislice computed tomography in patients after long-
term cure of Cushing’s syndrome. THE JOURNAL OF CLINICAL ENDOCRINOLOGY

AND METABOLISM 201; 98(3):1093 – 1102. FI 6.430, 1o cuartil ENDOCRINOLOGY
& METABOLISM (13 / 122). ISSN: 0021-972X 1945-7197.

• r e, s a, G-a b, l-M o, P P, V y, c i, P-
esMiniantosóMeznsonóPezoureloiresiVesresPoorte
lla MJ, de Juan-delaGo M, Webb sM. Functional abnormalities in the hippocampus of
patients with cured Cushing’s syndrome, detected by brain spectroscopy. CLINICAL

ENDOCRINOLOGY. 79(5):700-707;2013.FI3.396;46/121–2ocuartil-ENDOCRI-
NOLOGY & METABOLISM. ISSN 1365-2265.

• aulinas, a ; raMirez, MJ; barahona, MJ; Mato, e ; bell, o ; surralles, J; Webb, sM.
Telomeres and endocrine dysfunction of the adrenal and GH/IGF-1 axes. CLINICAL

ENDOCRINOLOGY. 79(6 ): 751-759; 2013. FI 3.396; 46/121 – 2o cuartil- ENDO-
CRINOLOGY & METABOLISM. ISSN 0300-0664.

• W, sM. How good is perceived health-related quality of life in patients treated for
ebb
non-functioning pituitary adenomas? CLINICAL ENDOCRINOLOGY 78 (1): 21-22; 2013.
FI 3.396; 46/121 – 2o cuartil- ENDOCRINOLOGY & METABOLISM. ISSN 0300-0664.

Highlights
U747 is a clinical group devoted to patient-oriented research on pituitary diseases,
with a translational component to the NHS, responsible for RD registries and colla-

borates with patient associations. In translational activities the PI is a member of
EUCERD, EPIRARE, Orphanet-España and coordinator of the investigation Program

Endocrine Medicine within CIBERER. Since 1982 she runs the Pituitary Clinic.

All publications are on endocrine RD and 3 in 2013 are in collaboration with other

CIBERER groups (U725A y U745).

The communication submitted by the CIBERER-hired Postdoc E Resmini to the Eu-
ropean Congress Endocrinology (Copenhaguen 2013) was selected as of general

interest, greatly echoed in international media (including CIBERER press notes), and ó

published in Clinical Endocrinology.

In 2013 the 2nd year of the competitive public project (ISCIII, PI 11-0001) and
another private competitive one of the Fundacin Merck-Serono have been develo-

ped and a postdoctoral Juan de la Cierva grant was obtained (E Valassi).

In transfer activity to the productive sector we conducted clinical trials (phases 2, 3 í
and 4), continued epidemiological studies and offered advice on pituitary RD, with

which income the research nurse O Roig continues to be hired (initially by CIBERER 13
20
until 2011). With the funds as author copyright rights of the disease-specific ques- T
tionnaires for Cushing’s syndrome and acromegaly (and recently also for primary OR
P
hyperparathyroidism) held by the PI and associated researcher X Badia, a pre- áRE
L
doctoral fellow is hired, who initially came to the group through a “starting grant” of A
the CIBERER in 2010.
NU
N
In 2013 an agreement between Novartis and the ESE (European Society Endocri- A
R /
nology) to support the ERCUSYN (European Registry on Cushing’s sd) registry ma- E
terialized; this registry began in 2007 thanks to the EU PHP funding, and currently ER
B
guarantees its viability for 5 years. U747 is the European coordinator of this registry.
CI

In march 2013 the associated researcher Ma Antonia Martnez Mombln defended
159
her PH D Thesis on Cushing’s syndrome.