Page 37 - CIBERER2016-ENG

MAPER
In 2016 information continued to be compiled for the MAPER database, which is the interactive map drawn up by the CIBERER with information on the biomedical research projects which are under way in Spain on rare diseases.
To draw up this map, information was compiled on competitive biomedical research and social-healthcare field projects on RD financed by the main public and private funding agencies. Apart from the accessible public information, this had the data provided by the Rare Disease Strategy Committee of the National Health Service. A large number of researchers have also cooperated with MAPER by voluntarily providing this information. The data on research projects validated and accessible over the MAPER web in 2016 is as follows:
• 647 biomedical research projects included. 96 of these included in 2016.
• 62 financing agencies participate in financing research into RD.
• 480 Principal Investigators included in the database.
• 513 RD included in the registry.
• 15 Spanish ‘autonomous communities’ or regions (29 provinces) where these projects are active.
• Presentation of results of the Congreso de Investigación Traslacional en Enfermedades Raras de la Comunidad Valenciana. Valencia 24-25 February 2016.
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